Rare Genomics Institute (RG) Announces Additional Slots for Rare Diseases Patients through Amplify Hope Project
— Additional opportunities available through RG two new sponsors —
Washington D.C., July 23, 2015 – Rare Genomics Institute (RG) today announced the opportunity for three free exome sequencing projects available for Amplify Hope patients if they enroll by July 31, 2015. The program’s expansion is funded by two new sponsors who have provided three exome sequencing gifts. Amplify Hope is a new study aimed at determining how crowdfunding can help people affected by rare diseases.
All qualified patients enrolled by July 31, 2015 will have a chance at the random drawing. One gift will be given by random drawing on August 1, 2015, and two other will be awarded as part of the Crowdfunding Bootcamp, the Amplify Hope training session funded by The Templeton Foundation.
The Amplify Hope program will offer an extension to enrollment until July 31st to allow more families to have an opportunity to participate in the project.
“We are so thankful for our new sponsors who provided this opportunity for patients who can benefit from this cutting edge technology, but cannot afford it on their own,” said Dr. Jimmy Lin, president of Rare Genomics Institute. “Clinical genomic sequencing has become a powerful tool to help patients with rare diseases uncover the hidden cause of their ailment and end their diagnostic odyssey. While this cutting edge technology is starting to be offered clinically and covered by some insurance companies, there are still many patients who lack coverage for these tests and cannot afford it out-of-pocket.”
Amplify Hope provides hope for families facing rare diseases who have been unable to access exome sequencing due to the cost. Through a collaborative partnership with Ambry Genetics and Baylor Miraca Genetics Laboratories and Crowdfunding pioneer partners CrowdRise, Indiegogo Life and YouCaring, participants in the program will have the ability to raise the funds necessary to uncover a diagnosis and find the answers they need. Amplify Hope also offers exome sequencing at a discounted price for those enrolled in the program.
Rare Genomics along with our crowdfunding pioneer partners CrowdRise, Indiegogo Life and YouCaring will train families on every step for successful crowdfunding campaigns providing free training, coaching and guidance, webinars, email templates, best practices for social media, team building and effective use of videos and pictures. These expert resources and tools are for all participants through every stage of Amplify Hope starting at preparation, launching and throughout their campaigns. After completion, sequencing is provided.
For more information about the Amplify Hope Initiative and to apply, please visit http://amplifyhope.raregenomics.org/
About Rare Genomics Institute
Rare Genomics is an international 501(c) 3 non-profit that makes cutting edge research technologies of genome sequencing, physicians and scientists around the world accessible to rare disease patients. Rare Genomics helps families source, design and fund personalized research projects for diseases not otherwise studied helping rare disease patients find hope for a cure. By providing an expert network and an online crowdfunding mechanism Rare Genomics works alongside patients and their families, providing them with the necessary tools, knowledge, and connections so that they can better understand the cause of their disease.
For further information on Rare Genomics, please visit http://www.raregenomics.org.